Ursula Van Mann has been involved in patient advocacy since her treatment for breast cancer. She has worked with several leading charities as a campaigner and in steering group /advisory capacities. She has served as a patient representative with NICE on most of the breast cancer related topics such as the Early and Locally Advanced Breast Cancer Guideline, the updates to the Familial Breast Cancer Guidelines and the Breast Cancer Quality Standards. She is currently a member of the Early Breast Cancer Guideline Update and the Diagnostics Assessment Committee on tumour profiling tests to guide chemotherapy decisions.
She is also a member of Use My Data and Cancer Research UK and British Heart Foundation’s Patient Reference Group which examines the issues following on from the Caldicott review, as she is a keen advocate for the use of patient data for research purposes. To this end, she also works with Public Health England in their Review of Informed Choices and Office for Data Release Activities.